The PRIDE Study refines demographic survey questions
In December, many of our participants received an invitation to respond to a survey titled Refining Demographics Questions. This survey was sent out in partnership with researchers from Stanford University as part of The PRIDE Study (lead by Juno Obedin-Maliver, MD, MPH, MAS, Mitchell R. Lunn, MD, MAS, and Annesa Flentje, PhD).

The goal of this survey is to make better demographic survey questions. As part of this study, researchers tested various forms of questions. Participants were randomized into 10 different groups that contained different forms of questions asking about sexual orientation, gender identity, sex assigned at birth, intersex questions, and whether someone is part of the LGBTQ+ community, since the ways these questions are asked can influence how people answer the questions. The different groups contained surveys that were more limited with fewer answer choices or had more expanded answer choices and formatting.

Read more about The PRIDE Study and this survey here.

Tune in to podcast #3, where our UCSF intern, Serena, and our Program Director, Madelaine, will answer some of your frequently asked questions about the study. Please note that we are unable to answer individual questions about health, but we will do our best to answer general questions about the study.

What is an Institutional Review Board (IRB)?
At some point the “IRB” is mentioned during this podcast. So what is an IRB? Institutional Review Boards (IRBs) are responsible for protecting people participating in studies by reviewing how studies are planned and executed to help ensure that participants are not exposed to unreasonable risk. Research involving people must be approved by an IRB before they start. Click here to learn more about UCSF’s IRB. 

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