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This Global ALS/MND Awareness Day, we’re honoring the power of storytelling, advocacy, and relentless love—through the lives and legacies of extraordinary individuals.

🎬 For Love & Life: No Ordinary Campaign follows Brian Wallach and Sandra Abrevaya as they transform Brian’s ALS diagnosis into a fight for justice.Their story sparked the founding of I AM ALS, a patient-led movement that has helped secure hundreds of millions of dollars in federal ALS funding and redefined what’s possible when patients and caregivers lead.

 

WATCH FOR LOVE & LIFE »🎥 And in Not Going Quietly, we celebrate the life of our late co-founder and Co-Executive Director, Ady Barkan. After being diagnosed with ALS at 32, Ady refused to be silent. His viral confrontation with a senator on an airplane launched a movement—and Be A Hero was born. Ady’s fight for health justice included powerful work to ensure that people with disabilities could receive home- and community-based care, and that the caregivers who support them are paid fairly and treated with dignity.

WATCH NOT GOING QUIETLY»

Ady knew that our healthcare system is isolating.

But he also believed in the power of storytelling to connect us—and to build collective power that can win bold, structural change.

These films are more than documentaries. They’re organizing tools. They’re love letters to what’s possible when we rise together.

📽️ Watch the films. Share their stories. Join the movement.

Because no one should have to skip life-saving care because of cost. Because caregivers deserve to be seen, heard, and paid. Because love and community are powerful forces for justice.

For Ady. For Brian and Sandra. For all of us.

In solidarity,
Be A Hero Team

 

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Paid for by Be A Hero Action Fund. Contributions or gifts to Be A Hero Action Fund are not tax deductible.

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