May Edition of ShrineLines is Here!

May 31, 2024
by RJ Hamster

ShrineLines

Welcome to May’s edition of ShrineLines! This edition features Benjamin’s story, a concert to honor Osteogenesis Imperfecta Awareness Day, and information about Shrines Children’s motion analysis centers.

Benjamin’s Story

Benjamin was just 3 months old when his parents noticed he was favoring one side of his head, turning it to one side more than the other. His family tried repositioning his head from side to side but did not notice much improvement.

The infant developed a flat spot on his head. Eventually, his parents were encouraged to take him to Shriners Children’s Chicago for a craniofacial evaluation. When he was 7 months old baby Benjamin came for his first appointment.

Click here to learn more about Benjamin’s journey and craniofacial care at Shriners Children’s Chicago.

Benjamin pictured at a clinic checkup.

Concert in Honor of OI Awareness Day

Children who have a rare brittle bone disorder may have 30 to 40 fractures during childhood. To honor Wishbone Day, National Osteogenesis Imperfecta (OI) Awareness Day, Shriners Children’s Chicago hosted a concert for OI patients and their families. Local parish choirs provided a Disney music concert conducted by a former patient who has OI. Starlight Children’s Foundation helped us provide Star Wars and Disney items for all the kids. Grown-ups joined in with mouse ears and yellow-themed t-shirts as well!

Patients and families enjoying the concert.

Helping Children through Motion Analysis

For some children, coordinating complex movements like running with their friends, picking up a pencil, or throwing a baseball can be uncomfortable, difficult or even impossible.

As a child grows and develops, so does their ability to move. When a child has a condition that changes typical development and makes movement difficult, advanced diagnostic techniques may be necessary to understand fully what is causing the movement problem. Motion analysis can help us understand the movement of children with neuromuscular, acquired or congenital disorders and develop an appropriate plan based on what we learn.

Shriners Children’s Chicago’s Motion Analysis Center:

Guides decisions regarding surgery, bracing/orthotics, medical management and/or rehabilitation
Better evaluates the outcomes of treatment (surgery, braces, etc.) on a child’s mobility and their ability to perform daily tasks
Provides a clearer understanding of how a child uses their walking aids or wheelchair
Detects subtle changes over time that, if addressed early, may prevent or minimize additional loss of function

The network of 14 Shriners Children’s MACs is the largest of its kind in the world. Through regular communication between our MAC locations, they share information, data and knowledge, which helps all of the children we treat.

To see the Motion Analysis Center at Shriners Children’s Chicago in action, watch the video below!

ShrinersHospitalsForChildren.org

2211 N. Oak Park Ave.
Chicago, IL 60707 US

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RJ Hamster

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May Edition of ShrineLines is Here!

May Edition of ShrineLines is Here!

Benjamin pictured at a clinic checkup.

Patients and families enjoying the concert.

Helping Children through Motion Analysis

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